This week has been…unhinged. Not in a dramatic way—just in the quiet, ongoing chaos that seems to define life out here.
Weather Advisory
The weather cannot decide what it wants to be when it grows up. We’ve had heat, storms, cloudless skies, and winds that feel like they’re carrying opinions. The land is restless, shifting moods by the hour, and everything living on it seems to be following suit.
Environmental Developments
A patch of moss outside the garage has continued its slow and determined expansion. What began a couple of years ago as something the size of a half dollar has now claimed nearly two square feet of territory. It does not ask permission. It simply advances.
There is reason to believe this is not an isolated incident.
A small portion was relocated near the porch for observation purposes. It took hold immediately and has shown no signs of hesitation. The working theory is that it is attempting to reclaim the front yard and reconnect with its original source beneath the sugar maple.
Containment efforts are ongoing. Success is unlikely.
Basement Broadcasts
Tamar has taken up her seasonal role as Basement Opera Singer once again. The performances are frequent, passionate, and completely unsolicited. Tickets are not available. Earplugs are recommended.
Domestic Affairs
The Great Window Hammock Dispute rages on in the bathroom. No treaties have been signed. No compromises reached. It is a contested territory, and negotiations have devolved into passive-aggressive glaring and strategic repositioning.
Neighborly Relations
In a surprising turn of events, the Neighbor’s Singing Bull has been silent all week. We are unsure if this is a temporary ceasefire, a loss of morale, or simply the calm before the next dramatic serenade.
Security Update
The raccoons have not returned to the garage. This is either a blessing or deeply suspicious. We are currently operating under the assumption that they are regrouping, scouting, or hosting their gatherings elsewhere. Their absence has not reduced suspicion. If anything, it has increased it.
Medical Report
Typhon, our resident himbo, attempted to consume a Spicy Sky Raisin and was promptly corrected by nature. He survived, of course, but has since leaned fully into his recovery, milking sympathy and affection at every available opportunity.
He did, briefly, have a moment of questioning his life choices…
but ultimately decided they were just fine after all and has chosen to carry on as before.
Supply Chain Issues
Meanwhile, Chimera has escalated her cheese acquisition tactics. What was once polite begging has now evolved into direct physical intervention. She grabs. She insists. She will not be denied.
Wildlife Watch
Nyx has seen no deer this week, but she remains steadfast in her duties. Ever watchful. Ever ready.
Boo and Z continue their bird patrol with unwavering dedication.
Comfort & Morale
Carmilla has firmly re-established her role as my personal snuggle-pillow, a position she holds with great seriousness and no intention of vacating.
Ongoing Conflict
And Medusa…
Medusa has once again engaged in tactical warfare with the stick and string. She won the battle. This was expected. The war, however, is far from over.
The wind still moves through the trees like it knows something we don’t. The sky shifts without warning. The moss spreads. The animals carry on with their small dramas and daily rituals.
Final Assessment
Order has not been restored.
But life continues—loudly, stubbornly, and a little bit sideways.
All is as it should be.
Until next time,
Peace—and be safe.
Personal reflections on living with CRPS, Alpha-gal, and fatty liver—sharing my journey, gentle recipes, food ideas, and the small things that help me keep going.
Showing Up for My Health
Today I had a health evaluation through my insurance.
Nothing dramatic. Just a nurse, a checklist, and a conversation about where I am right now. Blood pressure, weight, medications, meals… all the practical things.
I came prepared. Blood pressure cuff ready, current weight, medications and supplements laid out, and a general sense of what I’ve been doing lately. Not because I have everything figured out, but because I’m trying to take this seriously in a steady, manageable way.
We went over quite a bit—my medications and dosages, allergies, supplements, eating habits, exercise, recent weight loss, and the possibility of some digestive issues I’m still figuring out. We talked about my counseling, my PTSD, and the work I’ve been doing around self-reflection and learning how to redirect myself when my thoughts start heading in the wrong direction.
I told her something that feels important to me: I’m working toward self-mastery. Not control in a harsh way, but learning how to respond instead of react.
Even my dreams have started to change. They used to leave me feeling like a victim. Now, more often, I stand up for myself in them. I wake up feeling stronger instead of shaken. That’s new.
We also talked about how I manage pain and mobility. I’ve been focusing on core strengthening through Pilates and chair yoga because too much walking or standing still aggravates my feet. I still walk as much as I can, but I’m learning where my limits are and working within them instead of against them.
I’ve made some practical changes too. I use a stool at the stove so I can cook and wash dishes without pushing myself too far. We replaced the tub with a walk-in shower that has a built-in bench and grab bars. I have a cane, walkers, and a wheelchair available if I need them. I can still bathe, dress, cook, and drive myself to appointments.
It’s not about doing everything the hard way. It’s about making things work.
She asked about falls. I haven’t had any, thankfully, but I have had some close calls. We figured out part of that was fluid in my ears affecting my balance, and that’s been taken care of. Between that and the changes we’ve made at home, things feel a lot more stable now.
We also talked about my mental health in a very real way. I clarified that my medication is for PTSD, not general anxiety. I don’t live in a constant state of anxiety, but I do have occasional panic episodes tied to triggers. The difference now is that they’re becoming controlled panics. They don’t take over the way they used to, and they’re happening less often.
That feels like progress.
I also made sure she knew I have a good support system. I’m not doing this alone.
At the end of it, she told me she was really happy with what I’m doing—for both my mental and physical health.
I’m not sharing this because I have answers. I’m sharing it because I’m showing up.
If there’s anything to take from this, it’s not that you should do what I’m doing. We’re all different, and what works for me might not work for someone else. But it might be worth having the conversation—with your doctor, your care team, or whoever is helping you navigate your health.
And if nothing else, I hope this shows you that you’re not the only one trying to figure it out.
It’s not glamorous work. It’s often slow. Sometimes frustrating. But it’s still worth showing up for yourself, even in small ways.
Until next time,
peace and be safe.
Nothing dramatic. Just a nurse, a checklist, and a conversation about where I am right now. Blood pressure, weight, medications, meals… all the practical things.
I came prepared. Blood pressure cuff ready, current weight, medications and supplements laid out, and a general sense of what I’ve been doing lately. Not because I have everything figured out, but because I’m trying to take this seriously in a steady, manageable way.
We went over quite a bit—my medications and dosages, allergies, supplements, eating habits, exercise, recent weight loss, and the possibility of some digestive issues I’m still figuring out. We talked about my counseling, my PTSD, and the work I’ve been doing around self-reflection and learning how to redirect myself when my thoughts start heading in the wrong direction.
I told her something that feels important to me: I’m working toward self-mastery. Not control in a harsh way, but learning how to respond instead of react.
Even my dreams have started to change. They used to leave me feeling like a victim. Now, more often, I stand up for myself in them. I wake up feeling stronger instead of shaken. That’s new.
We also talked about how I manage pain and mobility. I’ve been focusing on core strengthening through Pilates and chair yoga because too much walking or standing still aggravates my feet. I still walk as much as I can, but I’m learning where my limits are and working within them instead of against them.
I’ve made some practical changes too. I use a stool at the stove so I can cook and wash dishes without pushing myself too far. We replaced the tub with a walk-in shower that has a built-in bench and grab bars. I have a cane, walkers, and a wheelchair available if I need them. I can still bathe, dress, cook, and drive myself to appointments.
It’s not about doing everything the hard way. It’s about making things work.
She asked about falls. I haven’t had any, thankfully, but I have had some close calls. We figured out part of that was fluid in my ears affecting my balance, and that’s been taken care of. Between that and the changes we’ve made at home, things feel a lot more stable now.
We also talked about my mental health in a very real way. I clarified that my medication is for PTSD, not general anxiety. I don’t live in a constant state of anxiety, but I do have occasional panic episodes tied to triggers. The difference now is that they’re becoming controlled panics. They don’t take over the way they used to, and they’re happening less often.
That feels like progress.
I also made sure she knew I have a good support system. I’m not doing this alone.
At the end of it, she told me she was really happy with what I’m doing—for both my mental and physical health.
I’m not sharing this because I have answers. I’m sharing it because I’m showing up.
If there’s anything to take from this, it’s not that you should do what I’m doing. We’re all different, and what works for me might not work for someone else. But it might be worth having the conversation—with your doctor, your care team, or whoever is helping you navigate your health.
And if nothing else, I hope this shows you that you’re not the only one trying to figure it out.
It’s not glamorous work. It’s often slow. Sometimes frustrating. But it’s still worth showing up for yourself, even in small ways.
Until next time,
peace and be safe.
Reports from the Unsupervised: Sunday Edition (Unverified Sources, Highly Questionable Journalism)
In all of the excitement of the past two days (writing and visiting), I completely forgot to post my report from the unsupervised! So I shall now present it today...Sunday Edition.
Sparta Outskirts — Conditions remain unstable.
Weather continues to behave like it has something to prove, with storms rolling in, rolling out, and occasionally circling back like they forgot their keys. Thunder has been reported loitering in the area, and the sky cannot seem to commit to a personality.
Local authorities (me) are monitoring the situation from a safe distance with a beverage.
In Other News: The Cheese Syndicate Expands
Chimera, Charybdis, Lizzy, and Scylla have formed what experts are calling a “highly organized and deeply persistent” cheese acquisition network.
Sources confirm:
No cheese is safe
No wrapper goes unheard
No human movement in the kitchen goes uninvestigated
Negotiations have failed. They are no longer asking.
Basement Opera Returns for Limited Engagement
Tamar and Hapshetsut (Tay and Happy) have resumed their nightly performances in what critics are describing as:
“emotionally charged,”
“deeply confusing,”
and “possibly a duet, possibly a territorial dispute.”
Tickets are unavailable. Attendance is mandatory.
Wildlife Report: Suspicious Deer Activity
Nyx has reported being watched.
A deer has been observed lingering at the edge of the property with what can only be described as intent. Motives remain unclear. Nyx remains unbothered, though mildly offended.
Investigation ongoing.
Birdwatching Division Files Daily Complaint
Boo and Artemis continue their surveillance of the outside world.
Birds have been:
Loud
Numerous
Entirely too confident
Chirping has reached levels described as “excessive” and “personally insulting.”
No arrests have been made.
Domestic Dispute: Window Hammock Crisis
Matriarch Ivy has once again asserted full and undisputed ownership of the window hammock.
Attempts at negotiation have been met with:
Silence
Stares
Immediate occupation of the space in question
Other parties are advised to “find somewhere else to be.”
Agricultural Update: The Singing Bull
The neighbor’s bull, previously known for unsolicited musical performances, has been notably quiet.
Experts are divided: Some say he is resting
Others believe he is plotting a comeback tour
Residents remain cautiously optimistic.
Breaking News: Garage Breach by Masked Bandits
In the early hours, 2–3 raccoons—described as “organized,” “determined,” and “absolutely without shame”—were discovered conducting a full-scale search operation inside the garage.
Evidence includes:
Items knocked over
Generalized chaos
A complete lack of remorse
Authorities suspect this was not their first visit.
Security measures are under review. The raccoons remain at large.
Breaking News: Human Immobilized
Typhon (approx. 20 lbs, classified as “himbo”) has successfully pinned a human to a chair.
Escape attempts have been deemed:
Impractical
Unnecessary
Emotionally complicated
The human has accepted their fate.
Closing Statement
Despite ongoing chaos, all systems remain functional.
Barely.
Reporting will continue as long as conditions allow and snacks are available.
Until next time, peace and be safe.
Sparta Outskirts — Conditions remain unstable.
Weather continues to behave like it has something to prove, with storms rolling in, rolling out, and occasionally circling back like they forgot their keys. Thunder has been reported loitering in the area, and the sky cannot seem to commit to a personality.
Local authorities (me) are monitoring the situation from a safe distance with a beverage.
In Other News: The Cheese Syndicate Expands
Chimera, Charybdis, Lizzy, and Scylla have formed what experts are calling a “highly organized and deeply persistent” cheese acquisition network.
Sources confirm:
No cheese is safe
No wrapper goes unheard
No human movement in the kitchen goes uninvestigated
Negotiations have failed. They are no longer asking.
Basement Opera Returns for Limited Engagement
Tamar and Hapshetsut (Tay and Happy) have resumed their nightly performances in what critics are describing as:
“emotionally charged,”
“deeply confusing,”
and “possibly a duet, possibly a territorial dispute.”
Tickets are unavailable. Attendance is mandatory.
Wildlife Report: Suspicious Deer Activity
Nyx has reported being watched.
A deer has been observed lingering at the edge of the property with what can only be described as intent. Motives remain unclear. Nyx remains unbothered, though mildly offended.
Investigation ongoing.
Birdwatching Division Files Daily Complaint
Boo and Artemis continue their surveillance of the outside world.
Birds have been:
Loud
Numerous
Entirely too confident
Chirping has reached levels described as “excessive” and “personally insulting.”
No arrests have been made.
Domestic Dispute: Window Hammock Crisis
Matriarch Ivy has once again asserted full and undisputed ownership of the window hammock.
Attempts at negotiation have been met with:
Silence
Stares
Immediate occupation of the space in question
Other parties are advised to “find somewhere else to be.”
Agricultural Update: The Singing Bull
The neighbor’s bull, previously known for unsolicited musical performances, has been notably quiet.
Experts are divided: Some say he is resting
Others believe he is plotting a comeback tour
Residents remain cautiously optimistic.
Breaking News: Garage Breach by Masked Bandits
In the early hours, 2–3 raccoons—described as “organized,” “determined,” and “absolutely without shame”—were discovered conducting a full-scale search operation inside the garage.
Evidence includes:
Items knocked over
Generalized chaos
A complete lack of remorse
Authorities suspect this was not their first visit.
Security measures are under review. The raccoons remain at large.
Breaking News: Human Immobilized
Typhon (approx. 20 lbs, classified as “himbo”) has successfully pinned a human to a chair.
Escape attempts have been deemed:
Impractical
Unnecessary
Emotionally complicated
The human has accepted their fate.
Closing Statement
Despite ongoing chaos, all systems remain functional.
Barely.
Reporting will continue as long as conditions allow and snacks are available.
Until next time, peace and be safe.
Sunday afternoon reflections
It has been a busy few days. Friday, I started writing on a novel that I shelved about eight years ago. It's a historic novel and I an sticking to the knownfacts as much as possible, while inventing where facts are unknown. It's a tragic tale, but one that needs to be remembered. On Saturday (yesterday), we went visiting family and had a wonder day. UNfortunately for me, even these short visits tire me out physically, although I'm not sure why.
My pain levels have been the same as they usually are. A twinge in my back that gets sharp if I move wrong, and my feet always burn, ache, and tingle aroud a level of 6-7. I have started eating foods that are gentle on my digestion, in case I really do have gastroparesis, and so farI am doing well. I am dropping weight rather quickly at the moment, but this should start to even out soon.
I didn’t wander off this time. I’ve just been… settling. There’s a difference.
After a few days of things being off—body, routine, timing—I’ve been easing back into something that feels a little more like myself. Not rushing it. Not forcing it. Just paying attention to what actually works instead of what should work.
Turns out, the small things matter more than I like to admit. A simple meal that sits well. Water actually being finished instead of forgotten. Getting up and moving, even if it’s just to clean a corner of the room or toss out the quiet pile of “I’ll deal with that later.” Nothing dramatic, but steady.
I’m learning (again) that progress doesn’t always look like big steps forward. Sometimes it looks like not sliding backward. Sometimes it looks like noticing when something feels right and choosing to stay there a little longer. And sometimes it looks like eating four gingersnap cookies slowly and calling it a win because I didn’t overdo it.
Balance, apparently, isn’t loud. It’s quiet. Repetitive. A little stubborn. But it holds.
Still here. Still adjusting. Still choosing steady over perfect.
And honestly? That’s enough.
Until next time, peace and be safe.
My pain levels have been the same as they usually are. A twinge in my back that gets sharp if I move wrong, and my feet always burn, ache, and tingle aroud a level of 6-7. I have started eating foods that are gentle on my digestion, in case I really do have gastroparesis, and so farI am doing well. I am dropping weight rather quickly at the moment, but this should start to even out soon.
I didn’t wander off this time. I’ve just been… settling. There’s a difference.
After a few days of things being off—body, routine, timing—I’ve been easing back into something that feels a little more like myself. Not rushing it. Not forcing it. Just paying attention to what actually works instead of what should work.
Turns out, the small things matter more than I like to admit. A simple meal that sits well. Water actually being finished instead of forgotten. Getting up and moving, even if it’s just to clean a corner of the room or toss out the quiet pile of “I’ll deal with that later.” Nothing dramatic, but steady.
I’m learning (again) that progress doesn’t always look like big steps forward. Sometimes it looks like not sliding backward. Sometimes it looks like noticing when something feels right and choosing to stay there a little longer. And sometimes it looks like eating four gingersnap cookies slowly and calling it a win because I didn’t overdo it.
Balance, apparently, isn’t loud. It’s quiet. Repetitive. A little stubborn. But it holds.
Still here. Still adjusting. Still choosing steady over perfect.
And honestly? That’s enough.
Until next time, peace and be safe.
A Quiet Few Days
Life didn’t stop—I just needed to slow down for a bit. Sometimes that’s how it goes. The body asks for rest, the mind follows, and the best thing to do is listen.
I’ve been focusing on small things. Gentle meals. Staying hydrated. Paying attention instead of pushing through.
There’s something to be said for that kind of quiet care.
I’ll be sharing more soon as I settle into a new rhythm and start tracking what works and what doesn’t. For now, I’m just taking it one step at a time.
Until next time, peace and be safe.
I’ve been focusing on small things. Gentle meals. Staying hydrated. Paying attention instead of pushing through.
There’s something to be said for that kind of quiet care.
I’ll be sharing more soon as I settle into a new rhythm and start tracking what works and what doesn’t. For now, I’m just taking it one step at a time.
Until next time, peace and be safe.
Spiral or Steady
Yesterday was a lot.
I received some news that shook me more than I expected. I won’t go into details, but it was enough to send my mind racing and my body into a familiar place of tension and discomfort. When things like that happen, I’ve learned that I have two choices: spiral, or steady myself. So I chose to steady. I stepped back. I slowed down. I reminded myself that I cannot control everything, but I can control how I respond in the moment. I made tea. I sat quietly. I let my breathing settle instead of feeding the panic. And I leaned into the small things that help my body feel safe again.
Living with chronic pain means that stress doesn’t just stay in my mind—it shows up physically. When my nerves flare, I have to be intentional about calming them.
So I returned to the tools that help me:
my TENS/EMS device to quiet the signals in my back
my vagus nerve stimulator, which helps my body shift out of stress mode
my red light lamp for warmth and comfort
Epsom salt soaks for my feet
supplements that support my system (magnesium, B vitamins, alpha lipoic acid, vitamin D)
elevation and ice when needed
Some of these things help more than others. Some help in ways I don’t fully understand. And some—like the detox foot pads I tried—don’t really do much at all, despite the claims. But I’m learning that this process isn’t about perfection. It’s about paying attention: noticing what helps, what doesn’t, and giving my body the time and space it needs to settle.
I purchased my TENS/EMS device after seeing a chiropractor for my degenerative disc disease and bilateral sciatica. This little device was inexpensive but has been an amazing muscle relaxer without resorting to prescription painkillers. I can’t use it directly on my feet because the sensation is too much for me, but on my lower back it still helps send signals to my brain that allow my body to relax and the pain to feel less intense.
The vagus nerve stimulator was also a budget purchase, but it has more benefits than I first realized. I bought it to calm my mind so I could sleep better. It turns out it also helps calm my entire nervous system, including the nerves in my feet, and may even help with digestion by stimulating the vagus nerve.
Right now, I have to eat very gently because I may or may not have gastroparesis. I can’t get in for testing until October. CRPS and fatty liver can both contribute to it. So this device helps calm my fight-or-flight response, improves my sleep, settles my nerves, and may even help my digestion. That’s a big win for me.
The red light therapy lamp came to me by accident. When I ordered the vagus nerve stimulator, I was sent the lamp instead. When I contacted the vendor, they told me to keep it and sent me my original order as well. I haven’t used it much yet, but I plan to start and track how I feel before and after using it—ten minutes, thirty minutes, and a few hours later.
These devices can be expensive and aren’t always accessible, and there are a lot of variables in choosing a good one. If it’s something you’re considering, it’s worth researching and discussing with your doctor.
As for supplements, everything I take is done with clinician guidance and monitoring. I don’t follow trends or add things on a whim—anything I use has been discussed and approved to make sure it’s safe and doesn’t interfere with my medications. I don’t add or remove anything without checking first.
If my doctors tell me, “No, that doesn’t work for you,” I listen and accept it. CRPS is still a new experience for all of us, so in some ways I feel like the guinea pig while we figure out what helps and what doesn’t. Thankfully, my doctors have been supportive of that process and appreciate that I’m trying to manage this without jumping straight to stronger prescription pain medications.
I’ll be honest—I’m not a fan of mind-altering medications, even though I technically qualify for them. That’s a personal preference. If I ever truly need them, I will listen to my doctors. But for now, I’m trying to manage things in ways that feel right for me.
This is something I will likely live with for the rest of my life, so I’m trying to think long-term. If I start on stronger medications too early, my body can build a tolerance to them over time, and they may become less effective—especially if my symptoms change or the pain increases. Because of that, I prefer to use other options first and keep those stronger medications available for when I truly need them.
This isn’t about avoiding care. It’s about pacing it, and working with my doctors to make sure I still have effective options later if things progress.
Everything I’m sharing here is simply what works for me, with guidance and approval from my care team. It’s not a one-size-fits-all approach—just my experience, and what is helping me right now.
Yesterday reminded me that stress and fear will come. That’s part of life. But I don’t have to stay there. I can pause. I can breathe. I can care for myself in small, steady ways. And sometimes, that’s enough to get through the moment.
Today, I’m still here. A little tired, a little sore—but steady.
I don’t take myself too seriously. I’m human, imperfect, and figuring things out as I go, just like everyone else. I don’t pretend to be bigger or better than I am. But if I can make someone smile along the way, then that’s enough for me. Sometimes, someone just needs a good laugh—and I’ve got plenty to spare.
I don’t need pity. I need understanding. The pain is real, the limitations are real—but so am I. And sometimes, the best thing I can do is laugh, not because it isn’t hard, but because it helps me carry it.
Until next time, peace and be safe!
I received some news that shook me more than I expected. I won’t go into details, but it was enough to send my mind racing and my body into a familiar place of tension and discomfort. When things like that happen, I’ve learned that I have two choices: spiral, or steady myself. So I chose to steady. I stepped back. I slowed down. I reminded myself that I cannot control everything, but I can control how I respond in the moment. I made tea. I sat quietly. I let my breathing settle instead of feeding the panic. And I leaned into the small things that help my body feel safe again.
Living with chronic pain means that stress doesn’t just stay in my mind—it shows up physically. When my nerves flare, I have to be intentional about calming them.
So I returned to the tools that help me:
my TENS/EMS device to quiet the signals in my back
my vagus nerve stimulator, which helps my body shift out of stress mode
my red light lamp for warmth and comfort
Epsom salt soaks for my feet
supplements that support my system (magnesium, B vitamins, alpha lipoic acid, vitamin D)
elevation and ice when needed
Some of these things help more than others. Some help in ways I don’t fully understand. And some—like the detox foot pads I tried—don’t really do much at all, despite the claims. But I’m learning that this process isn’t about perfection. It’s about paying attention: noticing what helps, what doesn’t, and giving my body the time and space it needs to settle.
I purchased my TENS/EMS device after seeing a chiropractor for my degenerative disc disease and bilateral sciatica. This little device was inexpensive but has been an amazing muscle relaxer without resorting to prescription painkillers. I can’t use it directly on my feet because the sensation is too much for me, but on my lower back it still helps send signals to my brain that allow my body to relax and the pain to feel less intense.
The vagus nerve stimulator was also a budget purchase, but it has more benefits than I first realized. I bought it to calm my mind so I could sleep better. It turns out it also helps calm my entire nervous system, including the nerves in my feet, and may even help with digestion by stimulating the vagus nerve.
Right now, I have to eat very gently because I may or may not have gastroparesis. I can’t get in for testing until October. CRPS and fatty liver can both contribute to it. So this device helps calm my fight-or-flight response, improves my sleep, settles my nerves, and may even help my digestion. That’s a big win for me.
The red light therapy lamp came to me by accident. When I ordered the vagus nerve stimulator, I was sent the lamp instead. When I contacted the vendor, they told me to keep it and sent me my original order as well. I haven’t used it much yet, but I plan to start and track how I feel before and after using it—ten minutes, thirty minutes, and a few hours later.
These devices can be expensive and aren’t always accessible, and there are a lot of variables in choosing a good one. If it’s something you’re considering, it’s worth researching and discussing with your doctor.
As for supplements, everything I take is done with clinician guidance and monitoring. I don’t follow trends or add things on a whim—anything I use has been discussed and approved to make sure it’s safe and doesn’t interfere with my medications. I don’t add or remove anything without checking first.
If my doctors tell me, “No, that doesn’t work for you,” I listen and accept it. CRPS is still a new experience for all of us, so in some ways I feel like the guinea pig while we figure out what helps and what doesn’t. Thankfully, my doctors have been supportive of that process and appreciate that I’m trying to manage this without jumping straight to stronger prescription pain medications.
I’ll be honest—I’m not a fan of mind-altering medications, even though I technically qualify for them. That’s a personal preference. If I ever truly need them, I will listen to my doctors. But for now, I’m trying to manage things in ways that feel right for me.
This is something I will likely live with for the rest of my life, so I’m trying to think long-term. If I start on stronger medications too early, my body can build a tolerance to them over time, and they may become less effective—especially if my symptoms change or the pain increases. Because of that, I prefer to use other options first and keep those stronger medications available for when I truly need them.
This isn’t about avoiding care. It’s about pacing it, and working with my doctors to make sure I still have effective options later if things progress.
Everything I’m sharing here is simply what works for me, with guidance and approval from my care team. It’s not a one-size-fits-all approach—just my experience, and what is helping me right now.
Yesterday reminded me that stress and fear will come. That’s part of life. But I don’t have to stay there. I can pause. I can breathe. I can care for myself in small, steady ways. And sometimes, that’s enough to get through the moment.
Today, I’m still here. A little tired, a little sore—but steady.
I don’t take myself too seriously. I’m human, imperfect, and figuring things out as I go, just like everyone else. I don’t pretend to be bigger or better than I am. But if I can make someone smile along the way, then that’s enough for me. Sometimes, someone just needs a good laugh—and I’ve got plenty to spare.
I don’t need pity. I need understanding. The pain is real, the limitations are real—but so am I. And sometimes, the best thing I can do is laugh, not because it isn’t hard, but because it helps me carry it.
Until next time, peace and be safe!
Reports from the Unsupervised – Introduction
Life out here has its own rhythm.
Some mornings begin with the deep, steady call of a great horned owl. Some nights end with the coyotes hosting what I can only assume are very enthusiastic neighborhood gatherings. In between, there are birds arguing, cats plotting, a neighbor's bull singing, and at least one ongoing basement opera with mixed reviews.
I shall be naming names (my various cats) and sharing all the gossip here on the farm.
Each Friday, this little corner of my blog is where I share those moments—the small, strange, funny, and sometimes oddly comforting pieces of life on the land. Nothing polished, nothing serious. Just observations from a place where the wildlife has strong opinions and the humans are clearly not in charge.
Welcome to the unsupervised.
I hope it makes you smile.
Reports from the Unsupervised – Friday Edition
Mother Nature is off her rocker again.
It’s April, which in Missouri means we’ve skipped politely past spring and gone straight into warm winds that feel like summer is trying to kick the door in early. The trees are growing, the grass is plotting, and something new changes outside every time I look out the window.
Indoors, the situation remains equally unstable.
Tamar continues her basement opera. Reviews are still mixed, though she remains deeply committed to her performance and refuses to acknowledge any criticism. The acoustics, unfortunately, are excellent.
In the garage, a raccoon has declared squatters’ rights and helped himself to Ash’s food. Ash, who is our visiting outdoor cat, has not filed a formal complaint but is clearly reconsidering his dining arrangements. Negotiations are ongoing.
Zenobia (Z) has once again rejected her water dish in favor of the bathroom sink. She insists on fresh, running water like the royalty she believes herself to be. The staff (me) remains undertrained but compliant.
And of course, Chimera, Queen of Cheese, continues to rule with quiet authority. She has received cheese recently. This has not altered her belief that she is being tragically underfed.
All is as it should be.
Meanwhile, the coyotes held another late-night gathering, the owl continues his early morning announcements, and I remain here, observing it all like a very confused but entertained narrator.
Until next week…
Some mornings begin with the deep, steady call of a great horned owl. Some nights end with the coyotes hosting what I can only assume are very enthusiastic neighborhood gatherings. In between, there are birds arguing, cats plotting, a neighbor's bull singing, and at least one ongoing basement opera with mixed reviews.
I shall be naming names (my various cats) and sharing all the gossip here on the farm.
Each Friday, this little corner of my blog is where I share those moments—the small, strange, funny, and sometimes oddly comforting pieces of life on the land. Nothing polished, nothing serious. Just observations from a place where the wildlife has strong opinions and the humans are clearly not in charge.
Welcome to the unsupervised.
I hope it makes you smile.
Reports from the Unsupervised – Friday Edition
Mother Nature is off her rocker again.
It’s April, which in Missouri means we’ve skipped politely past spring and gone straight into warm winds that feel like summer is trying to kick the door in early. The trees are growing, the grass is plotting, and something new changes outside every time I look out the window.
Indoors, the situation remains equally unstable.
Tamar continues her basement opera. Reviews are still mixed, though she remains deeply committed to her performance and refuses to acknowledge any criticism. The acoustics, unfortunately, are excellent.
In the garage, a raccoon has declared squatters’ rights and helped himself to Ash’s food. Ash, who is our visiting outdoor cat, has not filed a formal complaint but is clearly reconsidering his dining arrangements. Negotiations are ongoing.
Zenobia (Z) has once again rejected her water dish in favor of the bathroom sink. She insists on fresh, running water like the royalty she believes herself to be. The staff (me) remains undertrained but compliant.
And of course, Chimera, Queen of Cheese, continues to rule with quiet authority. She has received cheese recently. This has not altered her belief that she is being tragically underfed.
All is as it should be.
Meanwhile, the coyotes held another late-night gathering, the owl continues his early morning announcements, and I remain here, observing it all like a very confused but entertained narrator.
Until next week…
Today Didn’t Go As Planned — And That’s Okay
Today almost slipped by without a blog post.
Not because I didn’t care… but because life happened.
Meals to prepare. Water to drink. Meds to take. A body that needs a little more patience these days. I’m learning something important on this journey—this isn’t about perfection. It’s about consistency, and even more than that… compassion.
Some days I’ll have recipes to share. Some days I’ll have insights. And some days, like today, I just show up as I am.
Today was another day of small meals, listening to my body, and making choices that support healing—even when they feel inconvenient or unfamiliar. That counts.
If you’re on your own path—whether it’s health, lifestyle changes, or just trying to get through the day—know this: You don’t have to do it perfectly. You just have to keep showing up. Even if it’s a little late. Even if it’s messy. I showed up today. And that’s enough.
Until next time, peace and be safe!
Meals to prepare. Water to drink. Meds to take. A body that needs a little more patience these days. I’m learning something important on this journey—this isn’t about perfection. It’s about consistency, and even more than that… compassion.
Some days I’ll have recipes to share. Some days I’ll have insights. And some days, like today, I just show up as I am.
Today was another day of small meals, listening to my body, and making choices that support healing—even when they feel inconvenient or unfamiliar. That counts.
If you’re on your own path—whether it’s health, lifestyle changes, or just trying to get through the day—know this: You don’t have to do it perfectly. You just have to keep showing up. Even if it’s a little late. Even if it’s messy. I showed up today. And that’s enough.
Until next time, peace and be safe!
Listening to my body today
Today was one of those days where I needed to take things slow and gentle. I wasn’t very hungry, so instead of forcing myself to eat a full meal, I chose smaller, easier options.
I had some applesauce and focused on staying hydrated.
One of the things that worked really well for me today was a simple strawberry tisane. It ended up being both soothing and refreshing, and it sat very well on my stomach.
🍓 Strawberry Lime Tisane
12 oz hot water
3 frozen strawberries
about 1/4 packet of True Lime
2 drops of honey
I let the strawberries steep in the hot water, added the lime, and finished it with just a couple drops of honey.
It had a perfect sweet-tart balance—light, refreshing, and not too heavy.
🌿 What I’m Learning
I’m learning that I don’t have to push myself to eat large meals when my body isn’t ready. Smaller portions and gentle foods can still give me what I need. Listening to my body instead of fighting it has made a big difference.
🌿 A Gentle Reminder
You don’t have to do everything perfectly. Some days are about doing what you can, in small and manageable ways. And sometimes, something as simple as a warm drink can be exactly what you need.
Until next time, peace and be safe!
I had some applesauce and focused on staying hydrated.
One of the things that worked really well for me today was a simple strawberry tisane. It ended up being both soothing and refreshing, and it sat very well on my stomach.
🍓 Strawberry Lime Tisane
12 oz hot water
3 frozen strawberries
about 1/4 packet of True Lime
2 drops of honey
🌿 What I’m Learning
I’m learning that I don’t have to push myself to eat large meals when my body isn’t ready. Smaller portions and gentle foods can still give me what I need. Listening to my body instead of fighting it has made a big difference.
🌿 A Gentle Reminder
You don’t have to do everything perfectly. Some days are about doing what you can, in small and manageable ways. And sometimes, something as simple as a warm drink can be exactly what you need.
Until next time, peace and be safe!
Gentle Fruit Tisane
Why This Works for Me
This is something simple I’ve been incorporating into my daily routine. It’s light, soothing, and easy for me to tolerate.
I find it helpful when I don’t want something heavy but still want something warm and comforting. It also fits well with the smaller, more frequent meals I’ve been focusing on.
Ingredients
12 oz hot water
1 slice freeze-dried citrus (lemon, lime, or orange)
1/8 tsp ginger
1/8 tsp cinnamon
1/8 tsp nutmeg
1/8 tsp turmeric
How I Make It
Heat 12 ounces of water until hot (not necessarily boiling).
Add the freeze-dried citrus slice to the water.
Add ginger, cinnamon, nutmeg, and turmeric.
Stir gently.
Let steep for a few minutes before drinking.
Texture & Tolerance Notes:
Light and easy to sip
Not heavy or filling
Gentle on my stomach
Variations / Substitutions
I rotate between lemon, lime, and orange depending on what I have or what sounds good that day. Sometimes I’ll use two, or even all three together. If I want a little sweetness, I’ll occasionally add a small amount of honey. Spice levels can also be adjusted depending on how strong or mild I want it.
My Notes
This has become a small but steady part of my day. It’s simple, but it helps me feel a little more balanced and supported.
This recipe is based on my personal experience and is not medical advice. Please consult your healthcare provider for guidance specific to your needs.
This is something simple I’ve been incorporating into my daily routine. It’s light, soothing, and easy for me to tolerate.
I find it helpful when I don’t want something heavy but still want something warm and comforting. It also fits well with the smaller, more frequent meals I’ve been focusing on.
12 oz hot water
1 slice freeze-dried citrus (lemon, lime, or orange)
1/8 tsp ginger
1/8 tsp cinnamon
1/8 tsp nutmeg
1/8 tsp turmeric
Heat 12 ounces of water until hot (not necessarily boiling).
Add the freeze-dried citrus slice to the water.
Add ginger, cinnamon, nutmeg, and turmeric.
Stir gently.
Let steep for a few minutes before drinking.
Light and easy to sip
Not heavy or filling
Gentle on my stomach
I rotate between lemon, lime, and orange depending on what I have or what sounds good that day. Sometimes I’ll use two, or even all three together. If I want a little sweetness, I’ll occasionally add a small amount of honey. Spice levels can also be adjusted depending on how strong or mild I want it.
This has become a small but steady part of my day. It’s simple, but it helps me feel a little more balanced and supported.
Doctor Visit and Small Changes That Are Helping
Yesterday:
I had an appointment with the gastroenterology nurse practitioner. It was a fairly straightforward visit, but it feels like another step forward in figuring things out. We talked through what has been going on, and the next steps are now in motion.
I also discussed my current eating habits and my plans to begin incorporating chair yoga and Pilates into my daily routine. I’ve lost a lot of core strength, so I’ll be starting very gently and building up as I’m able. I tire easily, so pacing will be important.
I am scheduled for an abdominal MRI in about 8 days, along with lab work. So now it’s a bit of a waiting period.
I am currently dealing with stage three liver fibrosis, along with my CRPS and Alpha-gal. Thankfully, my gastroenterology team takes all of these things into consideration.
Today:
Today feels quieter after the appointment. Not necessarily better or worse—just in between. There’s some relief in knowing things are being looked at, and also that familiar uncertainty that comes with waiting for answers.
I had a rough night with pain in my feet due to CRPS. I have it in both feet, and it is starting to creep up into my left ankle now. It always gets worse at night. I’ve been trying to manage the pain without medications for now. I’m moving into my fourth year with this condition, and I am currently focusing on an anti-inflammatory approach, elevation, and ice when needed. Heat tends to aggravate my CRPS, while ice gives temporary numbness and relief.
I am also dealing with neuropathy pain in my feet, which makes walking and standing difficult. I use a cane for shorter distances and a wheelchair for longer outings. I still make a point to walk when I can. I don’t want my legs to atrophy, and my primary doctor has encouraged me to walk short distances daily. On good days, I walk around the house and to the mailbox.
My CRPS Journey:
My CRPS journey began in July/August of 2021.
At the time, I was working a physically active job as both a direct support professional and assistant manager of an apartment complex for individuals with disabilities. I began experiencing worsening pain in both feet and eventually sought medical care. I was referred to a podiatrist and initially diagnosed with Morton’s neuroma. We tried several treatments, including cortisone injections, but nothing improved the pain.
After the second injection, my foot became severely swollen, bright red, and hot to the touch. It was one of the most painful experiences I’ve ever had. I even had my first panic attack when a third injection was suggested.
I was then diagnosed with RSD, now known as CRPS.
I sought a second opinion, and both my primary doctor and another podiatrist confirmed the diagnosis. Thankfully, I had supportive providers and did not experience the kind of medical dismissal many people report.
I have since been approved for disability due to a combination of factors, including CRPS, asthma, and degenerative disc disease. It was a long process, but worth it. I had a good lawyer who helped me through it.
These days, my life is quieter. I spend my time reading, writing, occasional crafting, and managing pain. Reading helps me cope—I read 288 books last year, and I’m already over 100 this year.
How I’m Feeling Today:
Physical: Tired, worn down. Pain levels around 6–7 in my feet
Energy: Low to moderate
Mood: Steady, thoughtful
What I’m Doing Right Now:
I’m not following a strict “diet.” I’m working toward a lifestyle that supports what my body can handle right now. Because of Alpha-gal and my other health issues, I’m paying close attention to what I eat and how it makes me feel. I’ve been focusing on smaller meals throughout the day and keeping things simple and gentle.
Spacing food out works better for me than eating larger meals. For example, something as simple as a hard-boiled egg and a piece of toast works better for me than something heavier. I’ve also been incorporating fruit tisanes. They’re light, soothing, and easy to tolerate. It’s a small thing, but it helps.
Food Today:
Breakfast:
Hard-boiled egg (lightly salted and peppered), whole grain toast with plant butter, fruit tisane
Lunch: 1 cup chicken noodle soup, water
Dinner: 4 oz chicken breast, small salad (romaine, cabbage, carrots, vinegar/oil dressing), water
Snacks:
Morning — applesauce
Afternoon — tortilla with peanut butter
Drinks: Water, fruit tisane
Thoughts:
Right now, this feels less like following rules and more like learning a new rhythm. It’s not about restriction—it’s about paying attention. What feels okay, what doesn’t, and adjusting from there. I’m listening to my doctors and my counselor, applying what I’m learning, and giving feedback on what works and what doesn’t.
I’m very fortunate to have a strong support system—medical, mental health, friends, and family—all working together. I’ve had to learn to focus on what I can do, rather than what I can’t. I can still read. I can still write. I can still connect with people. I can still be present. That matters.
I’ll continue sharing what’s working for me, and what isn’t, as I go. If you’re walking a similar path, you’re not alone. Until next time—peace, and be safe.
I’ll share more of what’s been working for me, as well as what doesn't, as I go. I hope that my journey might help encourage others who are dealing with one or more of the issues I have will see that they are not alone on this journey. Yes it is painful, yes it's hard, but we can do this together. Until next time, peace and be safe!
Personal experience only — not medical advice. Please consult your healthcare provider.
I had an appointment with the gastroenterology nurse practitioner. It was a fairly straightforward visit, but it feels like another step forward in figuring things out. We talked through what has been going on, and the next steps are now in motion.
I also discussed my current eating habits and my plans to begin incorporating chair yoga and Pilates into my daily routine. I’ve lost a lot of core strength, so I’ll be starting very gently and building up as I’m able. I tire easily, so pacing will be important.
I am scheduled for an abdominal MRI in about 8 days, along with lab work. So now it’s a bit of a waiting period.
I am currently dealing with stage three liver fibrosis, along with my CRPS and Alpha-gal. Thankfully, my gastroenterology team takes all of these things into consideration.
Today feels quieter after the appointment. Not necessarily better or worse—just in between. There’s some relief in knowing things are being looked at, and also that familiar uncertainty that comes with waiting for answers.
I had a rough night with pain in my feet due to CRPS. I have it in both feet, and it is starting to creep up into my left ankle now. It always gets worse at night. I’ve been trying to manage the pain without medications for now. I’m moving into my fourth year with this condition, and I am currently focusing on an anti-inflammatory approach, elevation, and ice when needed. Heat tends to aggravate my CRPS, while ice gives temporary numbness and relief.
I am also dealing with neuropathy pain in my feet, which makes walking and standing difficult. I use a cane for shorter distances and a wheelchair for longer outings. I still make a point to walk when I can. I don’t want my legs to atrophy, and my primary doctor has encouraged me to walk short distances daily. On good days, I walk around the house and to the mailbox.
My CRPS journey began in July/August of 2021.
At the time, I was working a physically active job as both a direct support professional and assistant manager of an apartment complex for individuals with disabilities. I began experiencing worsening pain in both feet and eventually sought medical care. I was referred to a podiatrist and initially diagnosed with Morton’s neuroma. We tried several treatments, including cortisone injections, but nothing improved the pain.
After the second injection, my foot became severely swollen, bright red, and hot to the touch. It was one of the most painful experiences I’ve ever had. I even had my first panic attack when a third injection was suggested.
I was then diagnosed with RSD, now known as CRPS.
I sought a second opinion, and both my primary doctor and another podiatrist confirmed the diagnosis. Thankfully, I had supportive providers and did not experience the kind of medical dismissal many people report.
I have since been approved for disability due to a combination of factors, including CRPS, asthma, and degenerative disc disease. It was a long process, but worth it. I had a good lawyer who helped me through it.
These days, my life is quieter. I spend my time reading, writing, occasional crafting, and managing pain. Reading helps me cope—I read 288 books last year, and I’m already over 100 this year.
Physical: Tired, worn down. Pain levels around 6–7 in my feet
Energy: Low to moderate
Mood: Steady, thoughtful
I’m not following a strict “diet.” I’m working toward a lifestyle that supports what my body can handle right now. Because of Alpha-gal and my other health issues, I’m paying close attention to what I eat and how it makes me feel. I’ve been focusing on smaller meals throughout the day and keeping things simple and gentle.
Spacing food out works better for me than eating larger meals. For example, something as simple as a hard-boiled egg and a piece of toast works better for me than something heavier. I’ve also been incorporating fruit tisanes. They’re light, soothing, and easy to tolerate. It’s a small thing, but it helps.
Breakfast:
Hard-boiled egg (lightly salted and peppered), whole grain toast with plant butter, fruit tisane
Lunch: 1 cup chicken noodle soup, water
Dinner: 4 oz chicken breast, small salad (romaine, cabbage, carrots, vinegar/oil dressing), water
Snacks:
Morning — applesauce
Afternoon — tortilla with peanut butter
Drinks: Water, fruit tisane
Right now, this feels less like following rules and more like learning a new rhythm. It’s not about restriction—it’s about paying attention. What feels okay, what doesn’t, and adjusting from there. I’m listening to my doctors and my counselor, applying what I’m learning, and giving feedback on what works and what doesn’t.
I’m very fortunate to have a strong support system—medical, mental health, friends, and family—all working together. I’ve had to learn to focus on what I can do, rather than what I can’t. I can still read. I can still write. I can still connect with people. I can still be present. That matters.
I’ll continue sharing what’s working for me, and what isn’t, as I go. If you’re walking a similar path, you’re not alone. Until next time—peace, and be safe.
Welcome to Steady Through the Storm
Welcome to Steady Through the Storm.
This blog is my space to share my journey living with CRPS, Alpha-gal, and fatty liver issues. Life with chronic health conditions can be complicated, frustrating, and sometimes overwhelming, and this is where I’m choosing to talk about it honestly.
Here you’ll find pieces of my daily life—what I’m learning, what I’m trying, and what is (and isn’t) working for me. I’ll be sharing gentle recipes, food ideas, and the small adjustments that help me navigate each day a little more steadily.
I’ll also share experiences with doctor visits, changes in routine, and the reality of managing multiple conditions at once. Some days are easier than others, and both will have a place here.
This is not a place for medical advice. I am not a medical professional—just someone walking this path and sharing what I learn along the way. What works for me may not work for someone else, and every body is different.
If you’re here because you’re dealing with something similar, I hope this space feels calm, supportive, and real.
You’re not alone in this.
— Steady Through the Storm
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